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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @DrDavidPearce
    Research reveals possible basis for treatment for neurological disorders like #TuberousSclerosis http://t.co/jhynx6ab1X #rarediseases

  • @orphandruganau
    Read #RareDisease ▸ today's top stories via @SanfordCoRDS @premierresearch @GlobalGenes ▸ http://t.co/dOWpIRPDM4

  • @SanfordCoRDS
    CoRDS Registry was presented at 2nd Annual EPIRARE meeting today in Rome - More info at epirare.eu #raredisease http://t.co/kK25MoiCe0

  • @DrDavidPearce
    A good nights sleep allows the brain to clear itself if toxic metabolites http://t.co/Vc3NzRJCgY #brainwashing #GeekyScience

  • @SanfordCoRDS
    RT @SoftBonesHPP: Hypophosphatasia http://t.co/WSEae4i7jq map https://t.co/l3qr8Y7Lri @Enobia @SanfordBurnham @SanfordCoRDS @ORDR @RareDise…

  • @ZHeatherChamp
    @SDFatPhRMA @SanfordCoRDS Yes I'd like to know too!

  • @SoftBonesHPP
    Hypophosphatasia http://t.co/WSEae4i7jq map https://t.co/l3qr8Y7Lri @Enobia @SanfordBurnham @SanfordCoRDS @ORDR @RareDiseases #rarediseases

  • @SanfordCoRDS
    RT @KFSalliance: Submit your rare disease photo! http://t.co/RcvHBYHPoF #rare @RareDiseases @eurordis @SanfordCoRDS #research

  • @SanfordCoRDS
    RT @SoftBonesHPP: http://t.co/QEtLo63SkF @AlexionPharma @SanfordCoRDS @ORDR

  • @ZHeatherChamp
    Co-sign! MT “@SanfordCoRDS: @SDFatPhRMA: Q5: how can we leverage social media to raise awareness of #raredisease & collaborate #RarePOV”

  • @richadcock
    RT @SDFatPhRMA: Tomorrow's the day! #Raredisease Tweetchat on 10/17 at 4pm ET w/ @RareDiseases @GlobalGenes @FasterCures @NHCouncil @Sanfor…

  • @SanfordCoRDS
    RT @SDFatPhRMA: Tomorrow's the day! #Raredisease Tweetchat on 10/17 at 4pm ET w/ @RareDiseases @GlobalGenes @FasterCures @NHCouncil @Sanfor…

  • @SDFatPhRMA
    @SanfordCoRDS Thanks for joining #RarePOV ! When is your next #raredisease Tweetchat?

  • @SoftBonesHPP
    http://t.co/QEtLo63SkF @AlexionPharma @SanfordCoRDS @ORDR

  • @AllianceforCryo
    @SanfordCoRDS @SDFatPhRMA Last 3 yrs #raredisease on #SoMe has exploded now we need to implement ideas into action. #RarePOV